** ALWAYS HAVE HOPE. **
Diffuse Intrinsic Pontine Glioma is a very rare type of brain tumor found in the pons area of the brainstem. It primarily affects children between the ages of 5 to 10 years old. It is aggressive. It is a death sentence.
DIPG accounts for 10% - 15% of all brain tumors in children, with about 100, up to approximately 300, new cases, per year, in the United States.
That number is small, until you are one of the numbers.
Candace, and DIPG, is what we are all about. Candace's Cause is a non-profit organization established to honor Candace's life and her determination to live each day to the fullest, even in the face of the ultimate adversity. Candace fought for 16 months and it is in her memory, and with her same determination, we continue her fight.
Fewer than 10% of the children diagnosed with DIPG survive 2 years from diagnosis. Childhood cancer only receives about 4% in funding, and of that only approximately 1% goes towards DIPG research. A child diagnosed with DIPG will have no better a prognosis than that of a child diagnosed 20 years ago.
We want to change those statistics. We want more. - more trial studies - better treatments. We don't want to just find options, we want to MAKE them. We want a cure. And with your help, and with that same amount of determination, we think we can.
We are investing in a cure, a difference, the future! We hope you will, too. There is strength in numbers, power in passion! We thank you for your support!
Fairness to Kids with Cancer Act (See the entire article at https://fitzpatrick.house.gov/media-center/press-releases/fitzpatrick-gottheimer-stefanik-kelly-boyle-murphy-introduce-fairness)
'Bipartisan Legislation Seeks to Enhance Funding for Pediatric Cancer Research
Representatives Brian Fitzpatrick (PA-01), Josh Gottheimer (NJ-05), Elise Stefanik (NY-21), Mike Kelly (PA-16), Brendan Boyle (PA-02), and Stephanie Murphy (FL-07) recently introduced the Fairness to Kids with Cancer Act. This legislation seeks to adjust federal funding levels for pediatric cancer at a fairer percentage rate than is currently allocated.."
The intent is to increase federal funding for pediatric cancer research from 4% to 24%! Our kids deserve "more than 4"!! How can YOU make sure your voice is heard?? Write your congressman - email them, call them . . . Tell your congressman to co=sponser HR 4429. For our children. For their future!
We can ALL be the difference!